Wendy is right… ask for a second opinion!

March 7, 2011 at 8:41 pm

It’s cheaper to get a good sense of other docs and also might either get you a diagnosis or save your life.
Gabriel, getting PP or IVIG doesn’t mean you can simply jump back into life as it was before? You’ve had damages to your nerves and body, and it’d be wisest to go slowly to re-establish strength and equilibrium. With this stuff, slow and steady building [or rebuilding] up of strength IS a key to success.
If it’s just your feet for now? BRAVO! Count your blessings! Why? Because it’s hit others far far worse. Swallowing is the difficult one that needs to be fixed first tho! Somehow? It’s needed and also useful.
As for finding a balance in terms of what you can do or not? Be very careful and learn to listen to what your body is trying to tell you.
As to maintaining sanity throughout it all? Learn about body awarness techniques and about chronic illness coping skills. They can help you thru the worst of it all to a degree.
Fight hard to wallk, and to be able to walk without teetering, if you can! It’s the key door to keep open to independance. Hope this helps!