We are the few–We are the 3%
Most gbs’ers won’t have this happen but if you happen to be one of the unlucky ones (Probally because of the type of GBS you had) you will be pulling your hair out looking on the internet trying to get answers. Look at Post Polio –It took decades for the System to accept post poilo–Just Imagine how long it will take for us few.Poilio had three types–with GBS there are MANY and Many NOT even known yet. If you think you have POST GBS and had every test done under the sun with NO answers then I suggest looking at a Post Polio Clinic for a diagnosis
I think if you listen closely you will learn alot about ongoing research being done.
Make sure you watch till the end–questions and answers