Update on Daryl

September 8, 2006 at 12:25 am

It has been a while since I posted. We went on our annual Living History vacation, a ten day stay at Fort Stevens State Park, doing a Civil War Living History for 7 days and then a reenactment weekend with over 1000 reenactors and who knows how many visitors. Daryl had a wonderful time! His recovery has been pretty fast, thanks to a great doctor and a really wonderful children’s hospital in Portland Oregon. As long as he gets his neurontin on a regular basis, he has little pain. On bad days, he gets spastic movements and a lot of fatigue but it doesn’t stop him. We had an IEP session with his school today, talked to the teacher about GBS and what she had to do to help him. Thankfully, his speach therapist at the school had read up on GBS and understands his needs. Kindergarden starts Monday.