Update 12/16/09

December 16, 2009 at 8:53 am

I’m still not quite back to where I was before trying Cellcept, but very close.

I had no issues from taking the H1N1 swine flu vaccine. The headache, and feverish feeling went away the next day.

I had another PE last week on 12/11/09. I was kind of wiped out that evening, but bounced back quickly. I scheduled my next one for 1/15/10 (4 weeks) and intend to have one the following Friday too. (back to a 5 week schedule). Hope the effects of this last PE last that long.

I am working out regularly at the gym still. On alternating days I do “aerobic heavy” (for me) alternating with “aerobic light plus weight training”. My aerobic heavy is going 30 minutes on the ellyptical machine (400 calories) and 30 minutes on the treadmill (200 calories). My aerobic light is 30 minutes on the treadmill [B][U]or [/U][/B]ellyptical machine. My weight training consists of 2 sets of 10-15 reps: dumbells 35#, lat pulldown 70#, butterfly 125#, and bench press 160# (arms upper body); 2 sets of 15 reps each leg press 208#, calf extensions 208#, leg curl 100#. I am doing set ups as well, but I’m only back up to 35 (I was doing 70). I tried jogging on the treadmill Monday evening, but my feet are still too unsteady (numb post Cellcept) to let go of the bar. My ultimate goal is to get back to running in a 5-10K.

I still do my physical therapy band exercises for my feet, ankles, and lower legs and my finger/grip exercises regularly.

I realize I am SO blessed to have recovered so much. But it is so fleeting; the deterioration is very quick and I have to stay after it constantly.

My prayer for all of you still is for a wonderful Christmas and a CIDP/GBS free 2010.