I visited with my neurologist Friday 11/7/08. He was very pleased/impressed with my recovery. My motor function has recovered nicely in hands, fingers, feet and leg muscles (he even asked if I had played a round of golf since I had seen him last). My toes have recovered some function, but lag behind everything else. I can move them and even stand on “tiptoe”, but my toes themselves are weak. My reflex response was quite better, but only when I did exercise. My walking is almost normal now when I keep a normal gait. My foot drop is only noticable when I have walked enough to fatigue my muscles or if I walk quickly or with a big stride. I have much to be thankful for and give a lot of praise for my recovery. 🙂
The neurologist is still pressing for immunization against flu, pneumoia, and shingles. I am finally relenting today and will be taking the inactive flu vaccine. I don’t feel entirely comfortable with it though… 😡
The neurologist also wants to put me on an immuno suppresant, citing the frequency of my PEs, PE risks, and PE costs. My philosophy has been “don’t mess with success”, but I went through an onslaught of CIDP this weekend and I think it was a message to me that immuno suppresants are a wise course of action. :confused:
My body seems to be producing the “bad” antibodies on a cycle anywhere from 7-13 days and doesn’t seem to be even thinking about “spontaneous remission”. So it seems to make sense to “help” the remission process or to decrease the frequency of antibody production. He gave me the name of two immuno suppresants to consider (aziothioprine and [B][COLOR=”Red”]mycophelolate[/COLOR][/B]). He wants me to contact him in a month to talk over the +/- of each and decide which way to go next. The plan is to begin the immuno suppresants after the innoculations (sometime around the first of 2009). 🙁
I plan to post again in a few days after I’ve had the flu innoculation.
I’m glad my God is bigger than all of this…