I was a patient of Dr. Gareth Parry from Oct. 2002-July 2005. I say was, because I have not had to go see him since 2005 (or any neuro for that matter. I heard he is no longer accepting new patients, but would probably agree to see an extremely severe case, like I was. I really doubt that many neuros would give you this protocol if you are doing well on IVIG, as this is a very serious treatment program. Remember, I was without most of my immune system for almost 9 months, it was a miracle I never came down with an infection. But then I was basically bedridden & never in contact with people. If you are doing OK on IVIG count your blessings, get your infusions & live life to the fullest. I wish I had been one of those cases, seriously…

If you are doing well on IVIG, I imagine that they will keep yuon that protocol. What works for some doesn’t necessarily work for all. If you are seeing a different neuro, no worry, as thy all are available to each other for consult on cases. But just go, or keep with, the treatment that seems to be working for you. Best of luck…