To Regina

January 12, 2010 at 6:25 pm

Great to meet you, and thank you for your responce! I wish i could figure out how certain illnesses choose their victims, i guess there really is no way to know. Brayden was diagnosed at the Mayo Clinic in Rochester by a team of neurologists headed by Dr. Nancy Kuntz. I am very sad to say she left Rochester but her team is wonderful. She was givin the opportunity to head up a childrens hospital in Chicago! We just met our new doctor in Sioux Falls, SD. Dr. Bonnie Bunch.I cant tell you much yet but i know she has shared other patients with Dr. Kuntz. Brayden is going to start ivigs every 2 wks for a while to get him through the sick season. If he doesnt seem to stay strong for 2 wks, i guess Dr. Bunch wants to start him on prednisone or an immunosuppressant, not sure what that is yet. Hope you find the help you are looking for very soon! P.S it is great to have a little warmer weather, and to see the sun!!