September 2, 2009 at 8:23 pm

I had 2 of the top neurosurgeons say I needed TWO back surgeries for spinal stenosis and then I’d be fine. The recovery for each would take one year. After seeing how crippled back surgery made my dad I dug in my heels and said no.By accident I went to see a neurologist. He turned out to a neruomuscular specialist and knew immediately it wasn’t my back. He said I am going to find out what you have but he thought it was too late to help.Where had this man been all those years???

One of the neurosurgeons said I’d crawl back when the pain got so bad.

I really stated having symptoms in 1997.The doctors blow me off and then sent me to a pain clinic. I did have advocates but we didn’t know where to look. It was a maze without a road map.

I recently read a book on how physicians think in boxes. They may think our illness is Box A then maybe Box A-2 then Box A-3. They just can’t move over to the idea it’s Box B or Box C.

I’m sending JJM a PM.