Third infusion tomorrow 26MARCH…

March 25, 2010 at 6:52 pm

Hi Soapy,
I am due tomorrow all day, for my third infusion.
I personally don’t think this chemo drug will help me, so I am calling it that I am on my “Coolaid” drug.
I was on Cytoxan for 2 1/2 years, which slowed the progression of my CIDP, though it did not put it into remission. I finally had to go off the Cytoxan, as I was on it for so long, and it started doing damage to my kidneys and bone marrow.
This is the very last drug they can try.
But I had a meeting with a top neuro in the country 3 weeks ago. He told me that after 6 months, if the Rituxan didn’t do anything, he would then push for me to have stem cell transplant evaluation. But, he also said most likely all the damage that the CIDP has done to my body, which is ALOT since it hit my autonomic system, that most of it will be irreversible. NOT GOOD !!!

They know I am dieing, so, perhaps the stem cell transplant might then put it into remission, and leave me then the way I am now, from what I am guessing he said by that remark.

What is your view on this Rituxan. I failed at ALL other protocol of treatments, (steroids, IVIG, Plasmaphereses, immunosuppressants, Cytoxan), which is how I ended up with this final drug.
How did YOU end up on this drug, and WHY?

All the best,