the results are in…
The EMG isnt much different than it was in Novemeber. He doesnt think I’ve gotten any worse but also not any better. My arm is so bruised today ! He did the needle and shocks from the neck down this time with alot of concentration on my arm. ouch.
Anyway, he said he thinks the disease is simply “in check”…slight chance it has stopped progressing and all the numbness and weakness is just what’s left. He doesnt want to do any more IVig at this point…bc of my reactions and bc it doesnt make things better…and wrote a script for 90mg of prednisone every other day for eight weeks and then wean. I also got something for my stomach to take and plan to call my GP…that I cant stand…and ask for a diaretic.
I’m very torn about taking this steroid. Havent filled it yet.
He also ordered a test…a skeletal bone survey to check for myeloma and a 24 hour protein electropherisis urine study. You get to pee in a jug for 24 hours.
( cant let my four year old son see this…he’ll want his own jug !) 😀
So, this is where I’m at. I’m suppose to go for the xrays today but am going to reschedule for next Friday.
I really like my neuro…I just dont like the treatment option. He said plasma exchange is pretty invasive and would rather hold off.
does anyone think I’ll need an antideppresant to go with the steroids ?
I think I could use it just b/c I’m already depressed.