that’s a great book

March 9, 2008 at 12:15 am

I read it back in 1986 when I had GBS the first time. Luckily I did not read it until I started to get better. I had an excellent doctor who disgnosec it in his office. He is the one in Shillington that suzanne Sommers writes about in one of her books. I remember him standing at his sink washing his hands and telling me it was Guillain-Barre syndrome. Naively I said, Good, we know what it is. Now what do we need to do?” He said we would watch it. As I went back each time as I was getting worse, he said the same thing. I continued taking huge amount of vitamin C which slowed down the progress of it. He had me do a 24 hour urine collection and I could not take any supplements. I felt like I had been hit by a MACK truck.I quickly got back on the 15-20 grams of C and felt better. But I saw my body going down hill. Scarey. I had no idea how scared I should have been. As the numbness worked its way from the extremities, I feared that it would hit my heart or brain. One day I had a friend use a pendulum, said prayer for heolp, and we went through every supplement I could think. We asked, “WOuld this help me?” When we got to Adrenal Extract, it went crazy. Then I asked how much I needed. I started with, “IS 2 enough? 4? etc. When I got to twelve, it said YES. So I started with 6 and did not see any help but it didn’t kill me. SO I tried 12 and it stopped the progress of the disease and turned it around. My blood pressure went down and the numbness abated. WHen I told my doctor, he said that he was waiting for the disease to get worse and he would have hospitalized me and given me IVs of Vitamin C and Adrenal extract. He said I needed to take 12 because it is hard for the body to absorb it in oral form. That is when I found Joseph Heller’s NO LAUGHING MATTER. Thanks goodness I did not find it before this. It would have really frightened me. Before GBS only had a name, now I knew what I had sidestepped thanks to my supplements. It’s a great book to read afterwards. LAst year when I got GBS for the second time, I was not as lucky. BUt as I go back and read my old emails, I started getting symptoms in March and it did not hit its peak until October. This is why I really think it is viral. Vitamin C keeps the white blood cells healthy. And when I stopped it for 24 hours, the pain was unbelievable. I did not have a computer in ’86 so did not have this site for help. Maybe ignorance was bliss.