That Is Fantastic News!!!

March 25, 2010 at 7:10 pm

Hi Rhonda and Ryan,
It is fantastic news that the Cytoxan is working so well for him!!!

What is the plan with the drug? How long do they plan on giving it to him, then stopping? Are they going to eventually stop, then see what happens?
To see if he is finally in remission?

I wish I could have stayed on Cytoxan, as even though I did not go into remission, it had slowed the progression of the CIDP. But, after being on it for 2 1/2 years, it was finally doing damage to my kidneys and bone marrow.
Now I am on Rituxan, which I feel will not help me at all, but it is the last drug they have to use. But I have a slim chance I might be able to get stem cell transplant here in California, so, I am actually crossing my fingers that in 5 more months, that this Rituxan does NOT do anything, as that is when they said I would be able to go through evaluation for the transplant.

I hope they do not plan to have Ryan on the drug too too long, as what can happen like what happened to me.

Take care, and perhaps now he can get back to enjoying life like someone his age should be enjoying!