Thanks for all the replies
Thank you for all the advice on my pain. It is so good to have people to talk with that understand what you are going through, this board is a lifesaver. Our weather here in Michigan just today got cleared up and we had some sun in the afternoon, first time in a week. My pain is a little better, but I still need to take Vicodin for it. My PCP did give me a refill on the Vicodin. The Neuronton I take, 2400 – 3200 mg just does not get rid of all of it. Pain is such a debilitating part of CIDP. I told my husband I am Dr. Jekyl(in pain) and Mr. Hyde(out of pain). I told him and my daughter that when I say “I’m having a bad day”, that means I’m in pain and stay out of my way and don’t say anything to me. I hate when I take it out on them. I feel guilty enough having this damn stuff, without feeling guilty when I get in a bad mood. Thanks again for the input and I will pray for everyone and I think about all of you guys on this board. Too bad we can’t all get together to meet, but this board is second best to meeting in person.
Linda M – Thanks for the invite, I might take you up on it if I can’t get rid of this pain.
Linda W. – Thanks for the healing energy. Wyandotte is a nice place. I live in Garden City, kind of a bore city.
Clare in Michigan;)