Thank you Jen & Linda for thr replys
Thank you Jennifer, Thank you Linda,
Well, I am reluctant to state my beliefs but here goes. I have had severe pain from CIDP so I started this “out of the box” therapy ! I would like to say it’s working, maybe it is ! However, Linda’s reply states CIDP has a characteristic of having pain revist us… Simply put, did my “out of the box” treatment fix it or did it fix itself ??? I have stopped taking my pain meds (Gabbapetin) 100 %. I don’t get IVIG infusions and I feel good. My pain on a scale of 1 to 10 is 0 to1 with 0 being the average… I’m excited… or am I in a valley of false hope ? Will the pain return in yet a different location or did my snake oil work ? I can’t function on all 8 cylinders – but I’m not in pain and this means the most to me. I will let you guys know after 6 months if I belive this stuff works or not. Personally, I believe it works, to be without pain is a good thing, at least for me 🙂 I’ll keep ya posted. Let’s ALL hope it works !