thank you Dick!
You have said everything I need to hear so clearly!
I do tend to get upset and into a spiraling stress cycle. I’m coming into that as one of my “healthy realizations”. I looking at how I forgive myself from the act of blaming myself for having been ill and recovering. And, I’m asking for God’s help for understanding.
I’m working on being a real human being when i had always prided myself on being a human doing.
I appreciate your description of how to decode the problem of how much is too much. I would really rather have no down days, though even my healthiest of friends need time for rest quiet and regrouping. I like thinking of setting healthy limits to minimize the slam of quiet time. I’d rather have my quiet time be by choice than force.
I have spent the past 17 months of ivig treatment not dealing with my “condition”, but rather how to get out of it. I’m realizing that I have a new lifestyle and it can be very enjoyable. The choice is mine.
Thanks again! Erin
Thank-you Dick! I was considering going to Winston Salem but that is a longer drive for me. So I guess it’s going to be Duke instead. That is a long time going 2 1/2 years. But then I saw 5 years with Lupus trying to be diagnosed. Hoping it’s still Lupus and nothing else. Then maybe they can treat me faster. If it’s Lupus causing this we know the treatment plan. If it’s not Lupus then I have no idea. Is Duke really good place to go? I have heard they were good but have never experienced it before going there? Thanks for the encouragement. I’m hanging in there! Trying! Really trying!