Thank-you all so much for the warm welcome

July 27, 2008 at 9:30 am

Thank-you all so very much for the warm welcome here! I am looking forward to posting more often and it seems like a very nice group of people in here. Right now my doctors have not started me IVIG therapy just yet. We did get a positive skin biopsy of Lupus and they want to get another nerve biopsy to see just if it will give me some answers since my other nerve biopsy in the 90’s came out only giving neuropathy with no answers. But I was in the beginning of my disease process at that time.

My regular doctor has placed me on a low dose of steriods in hopes this eases up some, but the steriods really just are not enough. This morning because of the heat I felt something aweful. I was placed on pulse steriods years back but have never been on IVIG therapy and really don’t know what it is or what to expect.
I sure hope they start soon, for I see myself getting sicker and sicker and it’s tough trying to deal with it!

But thank-you for all the support you have given me! It’s going to take me a few days learning how to figure out the site, but I will catch on quickly. At least I still have my brain! 😀 Thank goodness for that!