Thank God for this GBS support group!
This site is my main GBS support group. I found it after many months of onset GBS. Gradual acute onset GBS immediately followed my 2007 flu shot. There was no info or answers from the medical people and agencies I turned to, while I suffered and endured the constant agonizing nervous system pain and severe muscle contractions, paralysis and crippling of arms & legs, effects of stroke, and all the rest that comes with GBS.
After many weeks of onset, I found a flu shot pamphlet from prior years which mentioned a rare reaction–GBS, and I then researched the internet for GBS, and found my symptoms. I found other sites which gave out statistics and other info about GBS, and a couple of support group sites. On one site, the info about GBS and the Canadian Medical Association is off-limits to the public, and only the medical professionals have access to it. I’ve settled in here over the past few years, and am very glad for the mutual support and interaction with others in this condition. The upfront knowledge and experience from others has been my mainstay during this terrible ordeal.
I don’t know how I would have survived without it.