Have you had any test done to confirm CIDP?
I am not sure of the name of the test but it tests the electric impulses of your nerves. Done by neuroligist.
What about a lumbar puncture? If it shows elevated protein it is a good indication of CIDP.
Good luck hopefully you get some answers soon.
I kind of agree that your doctors have done you no justice by not considering CMT as a diagnosis for you. When Selah was diagnosed, I personally looked thorugh my family for generations and my husbands family to see if there was any walking problems to rule out CMT and it really helped. My husbands family is kind of a mystery and they have a small family, which does not help as each person had like one child so it is harder to examine. Dr. Mendell said that he did not think it was CMT and that we could rule it out if ivig did help her and it did. Someone mentioned CMT having a connection to Muscular Dystrophy? There is doctor who works with Mendell at Nationwide Children’s in Columbus, Ohio who specializes in CMT. I have always remembered she is there but I cannot remember her name. I am sure it says on the website. Please keep us posted. We have been and are praying for you.