[QUOTE=Dawn Kevies mom]I think people who do not have conclusive ncv/emg or absent protein elevations are the people who turn to the biopsy.[/QUOTE]

Exactly. That would be folks such as myself. Inconclusive, or negative results on every test ‘they’ ever ran. Dozens and dozens of tests by dozens of doctors.

However, in my case, a sural nerve biopsy likely would have been negative.

I was inpatient at Mayo when I had my sural nerve biopsy done; it was never something I was given a choice about, I was just picked up by the transport team one day & taken down to have it done. It was just one of the many procedures that Mayo did that I question to this day. As far as permanently losing feeling, I have so little below the knees anyways, that I wouldn’t know the difference. But they said they would have to do it to get a dx of CIDP…