Steroids better for CIDP

January 9, 2008 at 10:23 am

Before I was given steroids back in 1984, my Neuro filled a legal sized piece of paper with all the side effects. I have been on steroids by mouth and occasionally by IV since then. It wasn’t until 1995 I was given IVIG, which I am now getting every three weeks. Although steroids have helped me with my CIDP, I have been hurt tremendously physically. My doctors are blaming the steroids for my brittle bones and loss of cartilege in the joints. These are just a couple of things I am dealing with now. My Neuro has been trying to wean me off the steroids, but it seems as though I cannot get lower than 10mg per day. Every time I go lower it seems as tho I have another relapse.