Spinal ataxia…

Welcome to the forum, sorry none of the standard treatments for CIDP have worked for you. I was strictly in a wheelchair from April of 2002 until the summer of 2004, when I began to walk minimally with a wallker. Then I graduated to canes by that fall & finally down to one cane by the following spring. Around the house I just use AFOs to walk; also got most of the use of my hands back. I was also refractory to IVIG, PP, & solumedrol infusions, but I was lucky that massive cytoxan infusions back in 2003 finally arrested my CIDP & allowed some nerve regeneration.

I remeber when I would go out with my walker in public & people would feel so sorry for me because I had to use a walker at such a young age. I know this because they would actually tell me I was too young! Little did they know how wonderful it felt for me just to be upright after such a long time!

I was curious about your dx of spinal ataxia, as ever since I began walking again I have dealt with lower back pain. I have been to 5 different doctors, had x-rays, & recently tried PT (which just made it even worse.) I was wondering if it was caused by sitting in a wheelchair for so long, but I have never had an MRI since 2002. I might try another cortisone shot. BTW tell us a little more about yourself, hope to see more posts from you…
Pam