Sorry! Pressed the wrong key!

August 11, 2008 at 11:42 pm


Hi Cathy

There has been alot written about pp over the last few months. One good thread is the one that I copied above. Have a read.

I had pp for 9 weeks; approximately 3x/week. It made all the difference for me I think — it isn’t the easiest thing in the world. I have a purely sensory CIDP, I went from not being able to wear shoes, to wearing at least something on my feet (in the winter, that is helpful!) Some people have a single round (of x weeks), through to people who need to have it on an ongoing basis. I had it 18 months ago and I have not needed it since. My calcium has been a problem ever since I had it though, the process removes the calcium from your blood because the molecule is too big to pass through the filter. I had calcium infusions every day during the 9 weeks, but it has been an issue since the pp. Otherwise, aside from the catheter, I didn’t find it any more difficult an the IVig. I have that for 2 days a month and have had it on an ongoing basis for 5 years. I would saythat I am stable at the moment.

I hope that you find something that gives you some relief. I would be happy to talk about my experiences more – either through pm or on the thread.

Take care