Sorry to all you wonderful caring people for not posting sooner. I have just been so exhausted that even the smallest tasks really take it out of me.

To update: I went to the ER on last Thursday. My facial numbness was increasing and the electrical shock-like pains down my body had me in tears. I got really scared so I sat in the ER for several hours only to be talked down to and looked at like I was crazy. I was asked many times how come I said my feet and legs were numb and getting number, only to also claim they were tingly? Also, how can I claim to be numb AND experiencing the terrible tear-jerking stabs of pain? I believe they thought I was an idiot and just looking for sympathy or drugs.

Finally after lying there crying for a couple of hours and my mom stepping in with her 2 cents, they sent me for a CAT scan “to rule out” a stroke. The on call Dr. claimed to have called and consulted with my neurologist over the phone and that “they agreed” that is sounded like a complex migraine. So at that point I was given a huge injection of morphine, halodol (sp?) and benedryl and promptly discharged! Hello? They gave me this drug cocktail and then let me leave???? (side note- I do have a history of migraines, but NEVER EVER like this) I was SO pissed off.

The shot doped me up so much that someone could have cut off my arm and I wouldnt have noticed. I went home and slept for many hours, not waking up until after 12pm the next afternoon. When I woke the pains and new numbness was gone, but the major fatigue and weakness in my legs remained. I spent the weekend trying to rest and not over do it as I noticed that if I spent any more energy than what was required to breathe I would start having a migraine-like headache and the sharp pains would start coming back.

I am going for my lumbar puncture today and to have a few words with my neuro. I will wait and chew him out AFTER he does my LP as I dont like the idea of pissing off someone who is about to stick a needle in my spine… 🙂 I thought about changing doctors, but supposedly he is one of the best in my area and then I would have to wait for an appointment and schedule tests, etc. My goal is to get my tests done, demand a copy of my file and then take them to another doctor for another opinion. I also have an MRI scheduled for next week. 3 hours lying in a tube sounds so much fun.

Sorry to be so long winded. But I wanted to update you wonderful people. Ya’ll have been great support and it has been much appreciated as I dont get much emotional support from my hubby as he doesnt handle medical problems well. He is a strong, smart man but he just doenst get medicine. Plus he hates things being wrong that he cant fix and currently he sees me as need repairs and he is qualified. 😀 God love him.

Still waiting in limbo,
Kelly