So far…

October 27, 2011 at 10:11 am

So far she’s only been in once to get the IVIG. She was on 250g every day for five days. It was on a constant speed of 30 and they didn’t increase it until the very end of her stay there. I have no idea what the brand was but she has to go back to see her consultant in two weeks so we’ll ask then. I’ll also ask him about the pre-meds before the next session of IVIG. Thank you again 🙂

so far…

June 22, 2006 at 1:52 am

I have passed all the information I got in the forums here to my aunt. We really appreciate everyone’s support and help.

My aunt said that my uncle had an attitude yesterday. He was nodding to her. She asked him not to try to talk, because she cannot guess what he is trying to tell her (he still cannot talk because of the breathing tube, and she hasn’t tried my alphabet method yet…) All of the sudden, he started to shake his head really hard because of what she said. While my aunt was holding his hand, he moved his hand away quickly (no big moment, but he kind of moved his hand away from her.) My aunt told me that she was surprised that he could move his arm, but I told her that it is still not good that he got mad. He kind of moved because he was mad, not because he was recovered. I don’t know what he was trying to tell her… Can anyone advise?

Today, my cousin was taking care of him in the ICU. She said that his eyes were opened a little bigger today. Perhaps he sees a little better or have a little more energy?

I just kept telling my aunt to stay positive with him and do not give up. I tried to inform her with all the information here. Hopefully that he’ll get better day after day… It is just really hard for her to take care of everything on her own right now.