July 19, 2008 at 5:50 pm

I have to say I am SHOCKED and appalled you all have been diagnosed with conversion disorder. I have a masters degree and am studying for board–like tests to become licensed in clinical social work–that all means I have training in mental health diagnoses and am qualified to diagnosis non-medical diagnosis (including conversion disorder) in practice. Anyway, from my studies I’ve learned conversion disorder is quite rare — way more rare that GBS, that’s for sure! I feel so lucky my neuro knew immediately what I was going through, even though the progression had been long before I saw her (regular doc didn’t have a clue what was up and I had to keep asking for tests). Here’s the thing, when you can, get a letter or something for your files stating clearly that your symptoms are not a result of conversion disorder. A neuro or psychiatrist can do this anytime, or a qualified, competent mental health clinician (LCSW, MFT, PsyD, etc) can do this for you based on medical records. Sometimes, those mental health professionals can be great advocates for you as well, in arguing against incorrect diagnoses as you are going through the process and recovery from GBS/CIDP. Good luck in your testing and finding more competent care providers. Foxflower