sensory autonomic gbs

January 10, 2010 at 6:56 pm

Hi Alice ,

I was not formally diagnosed with gbs however my gp believes it was either
lyme or gbs. We seem to be leaning toward gbs since onset was sudden and followed a chest infection. I didn’t have any problem walking although I had no sensation in my arms and legs. I also had orthostatic hypotension. Episodes of fainting or near fainting, a couple of trips to the er also thyroid levels were slightly high which put the anxiety over the top. I am progressing fairly well now however , back to work, with the only symptoms being some cramping in feet and hands, slight tremor and of course pretty darn tired at the end of the day.
As far as regulating blood pressure I would lay down with my feet raised if I was passing out and conversely use many pillows under my head and upper body to quiet the pounding pulse in my head when my bp would rise.
Since your post was some months ago I hope all is well now.