I’m getting IVIG every 10 days for the past 2 years. Dx in Novermber 2009. When I was weaned to every 2 weeks (once in Nov. 2010 and once in April 2011), I became weak again. I have 2 neurologists. When I asked her about SCT, she said she’s never heard of Dr. Burt; and says the risk is greater than the benefit. That’s only her opinion–she doesn’t know how CIDP feels and all the treatments, the anxiety, and worries we all have, the pain, tiredness, etc.
I once read that IVIG doesn’t induce remission. Don’t know if this is true or not; or everyone is individualized. I’ve had this disease for 2 years and I am still don’t know what to do. I did email Northwestern. I am indecisive. I am also very scared of the chemotherapy, things that could go wrong, the loss of my hair (this is a bad reason), can it really work? When I dwell on my disease, I get really depressed. I dont smoke, drink, or do drugs. Why did this happen to me???
Can the people who have gone thru SCT allay some of my fears?