Saw the Neuro for CIDP

January 22, 2007 at 7:35 pm

My husband got me in to see the neuro specializing in CIDP and other neuromuscular disorders:D
Thank you all for your insights and experiences. It helps a great deal!

I had more blood work done today for all the IGM tests, heavy metals, etc.
They do suspect CIDP still on gross exam but want to do another more complete EMG and also a lumbar puncture to help confirm elevated protein levels.

After reading the posts on this forum for the last few weeks it certainly helps to know what I am getting into and relieves me a bit from anxiety.

My neuro suggests IVIG. He is not a big fan of Prednisone (yeah!)

I will be scheduled within this week or the next so I am holding on until then.

My cold did set me back and I have more difficulty getting up and down more than before but I’m still walking.

Thank you for your well wishes.

Well post an update when I get thru the next round of tests.

Good health to you all,