August 7, 2008 at 4:06 pm

Hi JayDee,
You will be in our thoughts and prayers that all will go well with the surgery. Just like we never heard of GBS/CIDP until we were struck with it, Chiari 1 is something you never hear about until you’re told you have it.

I wonder about myself sometimes, but I’ve seen enough neurologists, some of them tops in their fields, to accept that CIDP is the correct diagnosis for me. My balance isn’t too bad, when I stand there’s just a “whole lot of shaking going on.” I basically was treated with IVIG’s, which did bring me to a remission, but since I’m severe, many times I’ve wondered if Rituxan or Cytoxin would have brought better improvements.