August 12, 2006 at 8:54 pm


Well, I hate to have to post this, but I’m losing ground now that we have gone from weekly IVIG to once every two weeks in combination with the rituxan. My hands and feet are getting more numb as time goes by.

However, my upper limbs are still much stronger than they have been in years. This is very discouraging and has me pretty depressed. I’m just hoping i don’t lose much more sensation and i can continue to play guitar once again.

I’m not sure what to think or feel at this point.:(


July 31, 2006 at 4:10 pm


I don’t know about what kind of CIDP I have in as much as I have never been given any other term than CIDP for my diagnosis. For a long time, I thought I was relapsing, but recently I have come to realize mine must be progressive. It does get worse if I catch a cold or flu, but over the past 8 years each therapy has worked great, then lost effectiveness. I really don’t know which category I fall into. (no pun intended) 😀