Reply To: The Language of Polyneuropathy

February 2, 2012 at 5:42 am

As a long time CIDP’r (18 years – IVIG ea 6 Weeks) I long ago sat down and re-thought how to explain my symptoms to myself and others. I got tired of waving my arms about and trying to expain’weird’ and saying ‘ya know?”. I needed some consistancy so I wasn’t all over the place. Almost everything I have experrienced fits into one of my categories. So, after much thought I decided to reduce my symptoms to 5 categories and leave the latin to the doctors. I’ll leave the details to your experience.
1) Mobility
2) Discomfort
3) Strength
4) Infalmmation
5) Numbness
I do think its important to understand the correct meical terminology. I have a copy of Taber’s Cyclopedic Medical Dictionbary that I find indespensible when reading research papers. I was pleased to find that ‘idiopathic did not mean ‘to wander about like an idiot’. I’ve been stuggling with the new format and really haven’t figured it out – yet. Best to all.