Reply To: Suprise, Suprise, Suprise

July 9, 2012 at 11:58 pm

hi Dick,
That is exactly how Kevie was every month for two years until we finally started breaking it up into 2 days every two weeks. It cut the sick feeling in half. Zofran works for the nausea but it also can cause headaches. We had the rash only the first 3 months then it stopped, it looked like prickly heat. One time we also had little blisters on his palms and feet. Do you remember Gabrielle? She had good luck with a solumedrol infussion post treatment. I am surprised the prednisone does not help you with the reactions. Is it possible you could bear with the reactions for a couple of more months of loading doses and then move to a maintenance dose? Good luck to you, keep us posted!