Reply To: rituxin for people WITHOUT the anti-mag type neuropathy

yes—you and i had many thymus discussions on the old forum—I had them saved in my messages in the old forum to refer back to 🙂 I have a nodule on my thymus which turned out to be benign. It was also discovered that my thymus was larger than most thymus glands of people my age—the thymus should shrink with age as it is most important during childhood. I saw a specialist and it was determined that my thymus was fine, just didnt shrink as much as most do. BUT….i can’t help but wonder about the whole thymus thing STILL???
when I asked about the T cell B cell thing regarding rituxin—-because rituxin kills b cells, what if my nerve damage is from T cells? i was told that they work together ( t and b cells) think of it as your hands, if you cut one off and went to clap it would not work well? strange analagy i know—just sharing what i was told—does it make sense to you?
regarding the sct, i was following a recent blog and it did mention that she got rituxin prior to cytoxin.
The one thing that makes me nervous regarding the rituxin (or any immunosuppressant) is that whole npl brain thing that is fatal and irreversible. It is the black box warning on most of the immunosuppressants. It seems the more immunosuppression yone has had had increases the odds. I had the jc antibody test done, awaiting results.
hopefully puberty will alter Kevins immune system and you won’t have to deal with the whole immunosuppression thing. It’s bad enough making these decisions for yourself as an adult—it would be very difficult to make them for your child.
How is Kevin’s mobility now ? How old is he? Well it’s been a while since i researched the thymus gland—lol– and i have the day off from work, so i am going to google—maybe you and i will uncover some great thymus mysteries and be rich and famous one day!!