Reply To: questions from recently diagnosed CIDP

February 20, 2013 at 6:44 pm

I recall that there was a period when I felt chronic fatigue before I began having noticeable symptoms of weakness in the legs. I am sure now that this was from the early stages of the disease. I don’t remember how long this went on, but it doesn’t matter as the timing would vary from one person to another.

By the way, the nerve biopsy is generally used to support the diagnosis when there is uncertainty about it. As you have had all the usual tests except this one, and your symptoms are consistent with CIDP, I expect your neurologist is confident of the diagnosis. Your insurance company has no business asking for another test, especially an invasive one, if your neurologist doesn’t need it, in my layman’s opinion. Every medical procedure has an associated risk.