Reply To: questions from recently diagnosed CIDP

March 21, 2013 at 12:53 am

I just wrote a post, but it lost it, so here’s the abbreviated version…  With all the tests, it seems that the diagnosis was clearly CIDP and the neurologist didn’t see a need for the nerve biopsy.  I started 60mg daily prednisone 3 weeks ago, but continue to get worse, while still trying to get ins. approval for IVIG.  I’ve had to take another medical leave from work.  Walking is difficult, my balance is off, my hands and arms are weak.  It feels almost like I’m walking around in a heavy, lead suit which makes all my movements slow and difficult, requiring too much effort and energy.