Reply To: questions from recently diagnosed CIDP

Just diagnoised this Feb, landed in Seattle Swedish Cherry Hill.  Medically stabilized (5 days) and then transferred to the Swedish Intensive Rehab.  Made amazing progressive thru Feb early March and was scheduled to go home 3/18, but had a major relapse starting 3/14 and continuing to today.  It really has gotten to me. The Docs here seem to think it was caused by reducing my predasone dosage and maybe the start of a preventive antibiotic Dapsone.  The upped dosage of predasone back to 40 mg orally per day and stopped the dapsone and are considering adding Imuran.  I have went from independent to dependent and after a month plus I believe I am out of benefits and just don’t know what to do or anything –  a very scarey time for me.  Please advise (1st posting here)