Reply To: Prednisolone making CIDP much worse….?

August 29, 2013 at 1:49 am

I am also one of those who got worse on prednisone. My calve muscles atrophied, I lost weight, walking became more difficult. I was on 60 mg pill form daily. I noiiced the weakness on my fourth day. I should have called my Dr then, but thought it was just side effects of the prednisone, i finished a 2 month trial, then tapered off.
I had PE, 5 treatments in 8 days. The process itself was not bad, I had problems with my blood pressure dropping extremely low, to the point of passing out during one procedure, other than that no probs.
Have been on ivig mainly, it’s a lot easier than the PE if yu get the same results from both.