Reply To: Pain/weakness (newbie)

May 21, 2012 at 1:09 pm

It sounds like you are saying your symptoms are worsening, which might make it cidp not gbs. If so, you should ask the new doc to start from scratch. Have you had a spinal, ncv/emg? If you have had a ncv/emg, maybe you could get another to see if there is additional demylienation which would be indicative of a continuing demylienation process. The arthritic type pain sounds like inflamatory pain which is typical of cidp. Have you had any treatment? ivig, pp steroids etc.? The first step would be to figure out if the additional symptoms or diminished stregnth is due to gbsresiduals or cidp. Keep us posted.