Reply To: Optic Neuritis Anyone?

April 16, 2012 at 8:15 pm

Thanks so much yall!! Dawn – My first symptoms with this whole mess after the IUD debacle.. were FAST heartrate (resting 140’s…. even while lying down in bed- would awake from sleep with this ugh.. along with GI issues.. ) I have always had a heart rate in the 60’s.. so this was very strange! The neuro symptoms followed and hit suddenly and fast shortly there after. I agree, I don’t fit the usual demographic for sarcoid…but it would explain a few things! I sware I have tongue atrophy (though all the neuros- even all the drs at the als clinic say no).. so hopefully I’m just crazy as far as that goes ๐Ÿ™‚ but sarcoid can cause that though, and also chest pain – I have had pains under the sternum with breaths for about 6 months now.. so we’ll see!! I have never tried steroids throughout all of this.. but the IVIG has worked tremendously.. sometimes more than others though. We may never find an answer, but as long as we can find a treatment that keeps things at bay a bit I am VERY VERY Thankful for that! ๐Ÿ™‚