Reply To: Not diagnosed..need help.

June 9, 2012 at 1:41 am

It seems to be hovering at the moment. Better than the flare up but still not feeling the best. My balance is not good, my legs are still a little weak and my breathing is a bit odd. My biggest concern is that my neurologist does not have an explanation of my symptoms but he is convinced that it is not CIDP. I am not sure if I believe him yet. My other biggest concern is that I keep reading that the best way to help prevent any worsening is by early treatment. I keep hearing horror stories about diagnosis not occurring for months to years and by then much irreversible damage has occurred. My days at work are challenging because of these symptoms. Especially the balance.