Reply To: Not diagnosed..need help.

June 11, 2012 at 10:44 pm

Thanks everyone. I will certainly recommend the skin/epidermal nerve biopsy. I asked about extending the MRI to include cervical, thoracic, and lumbar and was told that my insurance company only authorized for my head. It is concerning that insurance companies get to dictate tools to aid in diagnosis. I thought that a little odd. I looks like I have a couple of barriers ahead of me. Thanks again for everyones input. It does seem that it is difficult to get a quicker diagnosis when you look healthy. I too am (was) very active. Mountain biked 3 times a week, ice hockey once a week, father of two young busy kids, and husband…this is not easy for me. With the GBS I new that I would recover. This is too uncertain for me. The game with the Dr.s is going to be the most troubling for me. Even more frustrating is that i am an operating room nurse and I assist in surgery as well. I know all of the medical terms to use in order to describe my symptoms and still feel like I am being second guessed. Frustrating. Thanks again for all of your support and input. Everyone here are great resources. Thanks again.