Reply To: Newly diagnosed
the ivig, plasma x/c, or prednisone did not work for me. I’m currently trying rituxin (an immunosuppressant). In my case, I feel like my brain and feet are connecting fine, but my feet are just too weak to keep up with the rest of me. I have internal energy and lots of things i want to do—but i feel like my weak feet and calves are just not doing their part.
I have another friend, not on the board yet that im aware of. She mentioned the same thing you said about feeling like her brain and feet are not connecting. She’s not yet diagnosed but did mention something about ganglion root??? I don’t have any info on it for you–sorry, but thought of that when you mentioned the brain/feet comment. Regarding your comment above—you are sick, don’t feel useless.