Reply To: Newbie in Hawaii
Yes, doctors who know anything about cidp here in Hawaii are few apparently. The first one who diagnosed me was visiting from Serbia, then my PCP got sick and didn’t see my diagnoses. The working diagnoses came from Dr. Karnaze, also a temp nerologist with Kaiser. Try Dr. Stewart Pang, also at Kaiser(Oahu), through me he now knows about CIDP.
I had to complain all the way up the HMO bureaucracy ladder before I got any recognition, and I actually discovered CIDP on the web and sent the reference to a PCP who poo-poo it. Frustrating!
I’m not glad your mother has CIDP, but I am glad to know I’m not the only one here. I live on Maui. email me if you want a helping hand.
Best to you and mom