Reply To: New here. Recently diagnosed with CIDP; getting IVIG.

August 3, 2013 at 12:55 pm

It’s been a few months and I’m wondering how you’re progressing.

Had my loading dose (2gm/kg) over three days and my next dose (1gm/kg) a week and a half ago. Saw my doctor again yesterday as the pain and weakness has continued to worsen. He gave me a Prednisone pack to take over 6 days and will include Solumedrol infusion with the next few IVIG treatments.

I’ve been fortunate to have had no side effects from the IVIG other than a very mild headache that goes away quickly. I felt a little more energetic after taking the Prednisone, yesterday, but that may have been partially due to not having spent the day at work and my hopes being lifted by the doctor suggesting that strength may be returning to my arms and shoulders.

Still, the doctor has decided more blood tests are necessary to rule out other causes for this neuropathy. CIDP still seems the most likely culprit, but I am atypical (as though there’s some standard for CIDP).