Reply To: New Development, Need Advice

June 27, 2012 at 8:06 pm

My daughter Emily has had CIDP for 5 1/2 years now & she has received more IVIG than anyone I have ever heard of. It took us 5 years to get to IVIG every 5 weeks. She is now moving to every 6 weeks.

Over the years I have learned that just because the Dr wants to try something new – it does NOT mean you have to agree to it. You have the RIGHT and obligation to say NO if you are unsure about a new treatment plan. And if the dr doesn’t like it – then find a new one! Hopefully one that will listen to what you have to say & take your feelings into considerant.

By the way – going 5 weeks between treatments is AMAZING!