Reply To: Neuropathy… still?

November 8, 2012 at 2:13 pm

Hello all,

I wear socks, sandals, shoes and / or soft slippers. Putting them on is a challenge, but it doesn’t hurt a lot.

I take a lot of gabapentin / neurotin, 3600 mg a day, sometimes more. It has serious side effects, but I have no choice.

Receiving 37,5 mg IVIG every four weeks, this helps for about three weeks.

Coming meeting with the neuro we will decide whether or not increasing the frequence or dosage.

My foot has improved a little in the last six months, my hands have gone a bit worse.

This would have been better the other way around, but as we say in Dutch: ‘the bakery doesn’t make prefercookies’