Reply To: need spome advice on this cidp rollercoaster ride??

I was glad to read your post Markens—it confirmed what I was thinking after I spent the evening reading up on all the various immuosuppressants. They do not sound good–, and if it’s possible to stay away from them i would prefer it. I have been really paying attention since this last loading dose of ivig, to see if I can determine how long it is lasting. It’s difficult as my nerve damage is more axonal than myelin, very slow to progress so very slow to heal. Right now Im scheduled for loading doses every 6 weeks—-I thought I might try to get it every 4 weeks and see how that goes. I think the reason it worked better this time was because I had the PE and am going to ask if I should do that a few more times. So many things to consider—–guess i will know after the 19th.

Drew—no, diabetes and prednisone do not mix 🙁 I guess unless it was working REAL good for the cidp, I’d really have to weigh the pros and cons. I know of too many people who have had their feet amputated due to diabetes.. Be careful.