Reply To: Mystery – is it CIDP or not??

July 2, 2013 at 2:58 am

Some people with CIDP have nearly normal EMG’s. No one knows why.

Some other tests you should have are an MRI of your brain & spine. This should be done with & without contrast, a spinal tap to check the protein levels in your spinal fluid & blood tests for SED rate, ANA, and CPK.

It doesn’t hurt to have allergy testing done as well. Some people experience muscle weakness & tingling from different allergies – including food allergies. You may need to find a DAN (Defeat Autism Now) dr in order to get the appropriate allergy testing done – they seem to be the ones most interested & up to date on this subject.

I know it must be frustrating to know something is wrong with you but to not have answers. Keep searching for a dr that can help you. If you can, get yourself into a bigger medical center – like Mayo or John’s Hopkins.

Good luck,