Reply To: my rituxin experience

August 17, 2012 at 10:56 pm

hi everyone–glad to see the forum back up 🙂   It has been over 3 months since my last ivig infusion and i have not gotten any worse. I have had more energy, feels like my calves muscles are larger than they were.

I had my rituxin on june 14,  Dr said I should know by my late Sept. appt with her if its working.  I hope so, have felt much better, have many sensory things that werent there before, itching, pain, fascillations ,tapping sensations, stinging sensations–these are in place of where there is usually numbness.

A few times when I was getting impatient and discouraged with the waiting I read back through some old posts here on healing, and found a good one Alice posted on how painstakingly slow it can be, and sometimes you wonder if it’s even working. (she was discussing SCT-but i think it would also cover healing in general)  That post was most helpful right when I needed it 🙂

hope everyone is doing well and enjoying summer—to my western friends, I would love to send you some of this  New England rain!!  Lori