Reply To: Miller Fisher – Double Vision worsening!

Hi, Argos69 and Roddy,

My story can be found elsewhere in more detail, but I’ll recap here. At age 48, I contracted MFS as an elementary classroom teacher. This was in March of 2000, and I remember all too well. After fighting off a case of “pink eye” which I’d contracted from one of my students, I began seeing double while correcting Spelling tests on that Sunday night. Not a good thing! After setting up a substitute for a couple of days, I went to bed early thinking I would sleep this off. I’ll never forget when I woke up in the middle of the night and saw TWO distinct digital clocks reading 2:35. Needless to say, after seeing my ophthalmologist the next day, sent for a brain MRI, and finally admitted to the ER after losing all sense of strength and balance, I was diagnosed with MFS.

I spent 10 days in the hospital, several rounds of IVIG, and sent home. This was the most difficult part of all. The days went by slowly, and my vision did not improve. Here’s where I address your concern, Argos69. As with you, my vision did not improve, even when my doctors said to be patient. My question for you is, it’s now October. Did your vision get better? Are you still struggling with fatigue and balance as well?